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Old 02-07-2009, 09:51 AM   #16
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Hi Debbie. Thank you for the reassuring words. I know I got 8 bags of red cells and 5 other bags of platelets and serum. But is a US bag the same as a French bag? the best indication is that it represented 50% of my blood volume. So not as much as what you described for bad car accidents. My pulse had gone down to 5.3.
Yes, I went back for surgery for an hour and a half. But they say that it was unclear what broke first .... I agree that I must understand the reason before any other surgery. I skipped the second episode which was 48 hours after the transfusion when my blood pressure reached 17,5 and my pulse 140. I thought that was it again. But then they were really watching me and brought my heart beat down. It happens after transfusions they said...I have to recuperate now and when my head will be working better ask them for my reports and files.
Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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