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Wow, what a story!
Faslodex can cause irregular vag bleeding and in very rare cases blood clots; but it seems to me that even those would not contribute to hemorrhage.
Your other question, on the transfusion/recurrence issue, I googled it and there is some controversy over this but I saw references to some meta-analyses that did not find there to be a statistically significant increase in risk of recurrence. Maybe this is one of those things that is a persistent rumor with not really any basis in fact. You said you want to know "the truth"; I think maybe there is no answer for sure.
I admit, I didn't do a WHOLE LOT of research before responding to this post, so feel free to take the comments above with a grain of salt. Hopefully someone with more knowledge (or more adept at the research!) will have better input.
But the reason I felt ok responding even with so little "data" is that I didn't want to overlook the actual truth about what you described: you nearly died as a result of an undetected bleed with an unknown cause...then by a stroke of luck (I would call it grace), it was discovered by accident and you were saved.
Even you called it a miracle, and I agree. Maybe it's ok to just consider that the miracle was a pretty powerful one...and believe that it holds more power and meaning than some very thin data on possible complications in the future.
Much love
chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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