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Old 02-02-2009, 10:04 PM   #7
dchips1
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Join Date: May 2006
Location: Mesa, Az
Posts: 219
I have had WBR and 2 Gamma Knifes

I get my Brain Scans every 3 months. The Neuro and Rad at Barrows here in Phx said any closer then you can get misdiagnosed, because the radiation can cause swelling and necrotic tissue, before your brain absorbs the "wound" met. At Barrows it was nice because the MRI that they use slices your Brain in to smaller slices that normal MRI facilities use. So you get earlier detection than a regular MRI. I strongly encourage all HER 2 patients to get a baseline Mri after diagnosis. I just happen to mention it to my onc that my sinus headaches were more frequent!!!! Found 6 lesions the largest was in my brainstem! (2007) The 2nd follow up found the new lesion, had Gamma knife,(2/08) with follow ups it was shrinking until (11/08) then it grew.So now I am a MRI brain freak 3 months like clockwork. I chose to find it before it causes problems and you have options. Take CARE Keep moving forward and be persistent with your DR and Insurance companies. Darita
__________________
dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain

1/29/14 HIHO HIHO its off to Neuro surgery I go





Life is Good when you wake up in the morning and take a breath and know that God has given me another day.


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