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Old 01-23-2009, 06:28 AM   #14
Melissa
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Join Date: Jan 2008
Location: Virginia
Posts: 116
Norwegian,
Seeing a lymphedema specialist every second week is not enough. With lymphedema you need to go 3 -4 times/week for 3-4 weeks. I know several women that have had a lot of success with treatment. Ask your onc again about the lymphedema treatment. I HATE CANCER, ALL CANCER! I attend a cancer support group, not for everyone, but for me the group allows time to vent, to complain, to hate cancer, etc. and to support others who are in need. Also people in my group are teaching me to see the good things cancer has to give. I'm not there yet - I still can't see any good in a disease. Although I do think of the many people I've meant, realizing there is no subsitute for our time here, loving more deeply, etc. but frankly I still hate cancer. I also walk a lot, with two other BC survivors, which helps with the body aches and brain(harder for me to focus). I know it's hard, at times it felt like I was in a dark pit clawing my way out . You'll crawl out - I know you will. Sending you well wishes.
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Melissa

04/06, (42), 2cm tumor, 7/13 nodes, one positive node under clavicle
mastectomy/reconstruction
grade 3, stage lllb, er-65+, pr-90+, her2+++(80%)
4/AC, 12wks TH then 6wks rads
40 wks herceptin, and tamoxifen.
onc test tamoxifen resistance = poor metabilizer
04/07 ooph & on arimidex
08/07 completed herceptin

04/2022 - 16 year survivor!
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