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Old 01-21-2009, 11:10 AM   #33
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
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Rich, funny you should pull this post up today since I was going to myself. The wonderful mom that came into my office and got this seed planted in my head in the first place visited me yesterday.

She was on a plight to get this drug to be used in clinical trials on the east coast. Done. She worked with Dr Gordon and Rexin-G studies, clinical trials and the FDA. I will post later more important information about where it is on the FDA ladder and who is using this outside of clinical trials.

Mom, named Rose, has lost her home to her mission to save her son who has since passed. His name was Chris and it is in his honor that Rose has chosen me to be on her volunteer staff; I feel honored!! Maybe she lost her son and home, but Rose has not lost her battle.

She is working to get the balls rolling and to allow the average Joe to afford this. She has employed a lawyer to help her efforts to properly get balls rolling. Rose wants to start a program to get this to everyone who needs it. This drug is being used outside of clinical trials by some brazen doctors.

So, after another conversation with Rose I will post these doctors. Rexin-G was designed for pancreatic cancer but is being utilized by breast and ovarian cancer patients. Since June many wonderful things have happened and there is still more to come.

Working in a newspaper I must be careful of what news I can release right now. Soon to follow will be the press releases of vital information. I will provide as much information as I am legally allowed to at this moment.

Things are rolling forward. Even Rose says never think our voices have no sound. I am so proud of her, she took a hard situation and made it come true. Hang in there Warriors because each day we get on step closer to wonderful drugs that may help us in our own plights.

I am so excited!! We have a major project scheduled for next week. Right now Rose is trying to start a fund for the patients who have no medical or are falling between the cracks! So far this fund could finance another home for her. Nope, not Rose, for she does not want another home. She wants this dream to come true.....so far it is.

Please think of her as she works with this lawyer, the FDA, Dr Gordon and the drug company. I cannot wait to give her back some of the hope she has given to people she will never meet. Wish me luck, looks like this little lady will be keeping me busy. I have even postponed my breast cancer mission in Washington to see her through.

So Chris.....this is all in your honor. Although we never met and never will, I advocate this matter in your honor!>>Believe51
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