Kiniseo tape
Hi -
Debbie gives some good advice about moderation and trying things slowly. We have enough problems without getting a full blown case of lymphedema.
Having 18 nodes removed I was careful to go easy on the lifting and make sure I had my range of motion back before starting a program of strengthening with light hand weights.
Knowing several BC survivor friends who did become afflicted with lymphedema, I was scared about that. It seems that some type of injury was what first set off their swelling. Such as a fall, banging the arm or shoulder or car accident.
About 3-4 years ago I did develop some moderate swelling in my surgery side hand/wrist and went for consult and treatment. Had to wear a compression glove with foam strips for extra pressure. Then my therapist got training in Kineseo tape. That was a good alternative to me and I ditched the glove.
There has been no swelling to speak of for over a year and I no longer use those devices or need to massage for drainage. Guess it was "easy come, easy go" in my case.
As for hot tubs or hot pools, I will use them on occasion, but tend to keep my hand above the surface.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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