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Becky · 01-14-2009, 08:20 PM

As many of you know, I had an invasive Her2+, ER+ (50%) but pr neg tumor in my right breast and simultaneously had a dcis in my left breast at the same time. My dcis was 50% Er+ and 30% Pr+. It was not Her 2 tested. I was told it is not done on dcis. When I asked it be done, there was not enough tumor to do it. It was 3 mm to start with and I had slides made for Sloan Kettering (a second pathology opinion) and there was nothing left. Sloan Kettering also did not run Her2 on the dcis tumor but they confirmed the invasive side.

At the time, you really don't know what's what. (For example, I was told that the dcis wasn't even considered cancer but it is Stage 0 cancer). Its easy to make mistakes in the beginning yet the beginning is where its important to do everything right.

01-14-2009, 08:20 PM	#4
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	As many of you know, I had an invasive Her2+, ER+ (50%) but pr neg tumor in my right breast and simultaneously had a dcis in my left breast at the same time. My dcis was 50% Er+ and 30% Pr+. It was not Her 2 tested. I was told it is not done on dcis. When I asked it be done, there was not enough tumor to do it. It was 3 mm to start with and I had slides made for Sloan Kettering (a second pathology opinion) and there was nothing left. Sloan Kettering also did not run Her2 on the dcis tumor but they confirmed the invasive side. At the time, you really don't know what's what. (For example, I was told that the dcis wasn't even considered cancer but it is Stage 0 cancer). Its easy to make mistakes in the beginning yet the beginning is where its important to do everything right. __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"