HER2 Support Group Forums - View Single Post - Vitamin D3- by Larry Norton

StephN · 01-13-2009, 01:39 PM

Hi Everyone -

Vickie H - was wondering what the follow up is with your high dose vitamin D. How long are you supposed to take the 5 - 10,000iu daily? Will you have new bloodwork to test the level?

As for the level that seems to be theraputic, my med onc recommends in the same neighborhood as Vickie's. It is felt I should be at 50 to 55. I was given the impression that this is what is coming out of the cancer meetings.

I have always been a breakfast eater - need that boost in the morning. So no problem with my getting enough fat somehow for absorbtion of the vitamins I take. Always taken supplements with enough food except something like COX2 inhibitor which says to take between meals.

Don't know HOW many friends I have had to instruct that taking the vitamins with just a cup of coffee or orange juice in the morning is a waste of their money. So many seemingly intelligent people do not know that they need some fat to break down the vitamins. Wonder why the companies don't put such instruction on the labels or the stores don't print little handouts??

01-13-2009, 01:39 PM	#6
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Hi Everyone - Vickie H - was wondering what the follow up is with your high dose vitamin D. How long are you supposed to take the 5 - 10,000iu daily? Will you have new bloodwork to test the level? As for the level that seems to be theraputic, my med onc recommends in the same neighborhood as Vickie's. It is felt I should be at 50 to 55. I was given the impression that this is what is coming out of the cancer meetings. I have always been a breakfast eater - need that boost in the morning. So no problem with my getting enough fat somehow for absorbtion of the vitamins I take. Always taken supplements with enough food except something like COX2 inhibitor which says to take between meals. Don't know HOW many friends I have had to instruct that taking the vitamins with just a cup of coffee or orange juice in the morning is a waste of their money. So many seemingly intelligent people do not know that they need some fat to break down the vitamins. Wonder why the companies don't put such instruction on the labels or the stores don't print little handouts?? __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.