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Midwest Alice · 01-08-2009, 03:12 PM

Hi, thanks for asking. I am doing well. I will have my Hercepton this coming Monday. I am on every 3 weeks.

I was turned down for a vaccine study at the university of Washington because my muga and eco were not in "normal range" I was really sad. I told my chemo friend and she got in, we were going to travel together. She may still do it.

I found a new vaccine study in NC and have talked to them. I have to be done with Hercepton for 30 days and that won't be till August.....the one at U of W you take while you are taking Hercepton. I liked it better.

My onc may keep me on something because of my DX. I will ask him for some idea so I can start researching different drug or drug combos. There may be a drug study I would like to get in. You all know so mush about all this. Whats out there that would be next? I do not want to go with out any treatment.

I have my next scan in April. This will be # 3, #1 included my brain, #2 did not. What about # 3? Should I try to get a brain scan also?

I do feel good, healed and blessed every day. I believe God knows what is ahead for me and I trust Him, what ever is ahead.

This support group is a blessing and I read posts almost daily.

Thank you sooooooo much!

Alice

01-08-2009, 03:12 PM	#4
Midwest Alice Senior Member Join Date: Dec 2008 Location: Southern Indiana Posts: 455	Hi, Hi, thanks for asking. I am doing well. I will have my Hercepton this coming Monday. I am on every 3 weeks. I was turned down for a vaccine study at the university of Washington because my muga and eco were not in "normal range" I was really sad. I told my chemo friend and she got in, we were going to travel together. She may still do it. I found a new vaccine study in NC and have talked to them. I have to be done with Hercepton for 30 days and that won't be till August.....the one at U of W you take while you are taking Hercepton. I liked it better. My onc may keep me on something because of my DX. I will ask him for some idea so I can start researching different drug or drug combos. There may be a drug study I would like to get in. You all know so mush about all this. Whats out there that would be next? I do not want to go with out any treatment. I have my next scan in April. This will be # 3, #1 included my brain, #2 did not. What about # 3? Should I try to get a brain scan also? I do feel good, healed and blessed every day. I believe God knows what is ahead for me and I trust Him, what ever is ahead. This support group is a blessing and I read posts almost daily. Thank you sooooooo much! Alice __________________ Alice 04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53 06/08, 4 A/C, Neulasta 08/08, Herceptin/tax 12 every week 10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks 11/08 33Rads; 12/08 MUGA 48 2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove 4/09 Brain MRI - CLEAR; MUGA 54 7/09 chest ultrasound, 10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!! 1/11 Hip replacement 7/11 Hip 2 replacement 4/12 4 years!! Herceptin 6/12 start reconstruction finish in 12/12 2/14 Herception - 6 years!!! 1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you can stand up under it."