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chrisy · 01-04-2009, 04:59 PM

Sheila, I'm so relieved to hear you are feeling at least a little better.

Hope you are able to get treated this week - I know you want to be taking stronger action against the growing node. And it must be especially frustrating to make that long journey only to be turned away. I know how I felt when I was sent home with empty veins (no DM1); I was so upset I was crying - and this while feeling otherwise quite well. I would have crumbled completely in your situation - but you are made of much sterner stuff than I. Or maybe it's just being out of Illinois so long has made me soft.

Remember, its a delicate balance between getting the medicines to fight the cancer and marshaling your own resources to do so. Keep putting yourself #1 - you need to focus on your own rest and recovery and not feel like you need to be babying your hubby. Although I'm sure he would appreciate it, his deepest priority is still for YOU to be well.

I wish I could be there (frigid weather and all) to make you a nice big pot of chicken soup.

Take good care, my dear Sheila
Chris

01-04-2009, 04:59 PM	#17
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Sheila, I'm so relieved to hear you are feeling at least a little better. Hope you are able to get treated this week - I know you want to be taking stronger action against the growing node. And it must be especially frustrating to make that long journey only to be turned away. I know how I felt when I was sent home with empty veins (no DM1); I was so upset I was crying - and this while feeling otherwise quite well. I would have crumbled completely in your situation - but you are made of much sterner stuff than I. Or maybe it's just being out of Illinois so long has made me soft. Remember, its a delicate balance between getting the medicines to fight the cancer and marshaling your own resources to do so. Keep putting yourself #1 - you need to focus on your own rest and recovery and not feel like you need to be babying your hubby. Although I'm sure he would appreciate it, his deepest priority is still for YOU to be well. I wish I could be there (frigid weather and all) to make you a nice big pot of chicken soup. Take good care, my dear Sheila Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure