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Believe51 · 12-31-2008, 09:41 AM

Dearest Flori, your post is what I have been hearing from Ed for a long time. I am so sorry that you are feeling so terrible. I cannot grasp the words I need to say today since I have a 'corker' of a headache. Just wanted to reach out and send love and empathy to you. It pains me to hear you got kicked again.

"If I spend all my time resting and waiting then what good is my time?" Ed has asked me the same exact question and we all know the answer. This too shall pass, be patient with your body and get to the pain management clinic asap. The patch Ed is using in a Godsend and allows the pain to dull enough so he can rest. You will find your magic potion there and I pray that it will be soon. I have not spent much time with him since the pain he is in, I miss him so but I know we too are off to better days very soon. Believe it or not, 80% of our Christmas gifts still lay under the tree. Our gifts will be late but the big man will be delivering then, even if it is the end of January.

Hang tough My Sweetness, help for pain is on the way. Your family may be missing you but not for long. When you are past this, the comfort foods you make and share will be all the better. Take some time after you are up to par and bake away. Although missing you, your family knows you are right there.

I love you. Sending you a gentle hug and whispering in your ear that I am so glad if you had to vent that it was with us. After all, who can understand better?>>Believe51

12-31-2008, 09:41 AM	#2
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 3,000	Dearest Flori, your post is what I have been hearing from Ed for a long time. I am so sorry that you are feeling so terrible. I cannot grasp the words I need to say today since I have a 'corker' of a headache. Just wanted to reach out and send love and empathy to you. It pains me to hear you got kicked again. "If I spend all my time resting and waiting then what good is my time?" Ed has asked me the same exact question and we all know the answer. This too shall pass, be patient with your body and get to the pain management clinic asap. The patch Ed is using in a Godsend and allows the pain to dull enough so he can rest. You will find your magic potion there and I pray that it will be soon. I have not spent much time with him since the pain he is in, I miss him so but I know we too are off to better days very soon. Believe it or not, 80% of our Christmas gifts still lay under the tree. Our gifts will be late but the big man will be delivering then, even if it is the end of January. Hang tough My Sweetness, help for pain is on the way. Your family may be missing you but not for long. When you are past this, the comfort foods you make and share will be all the better. Take some time after you are up to par and bake away. Although missing you, your family knows you are right there. I love you. Sending you a gentle hug and whispering in your ear that I am so glad if you had to vent that it was with us. After all, who can understand better?>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!