HER2 Support Group Forums - View Single Post - Report Was Wrong-----another Tumor

Believe51 · 12-24-2008, 09:28 AM

Uggh!! What were they thinking when they sent the report over w/o being sure and why did they reread this after sending it?? Don't they know how we need to know the outcome, be it good or bad, so that we know what we are up against? Don't they realize that those reports 'tell' us how to feel, either complete relief of what is the next course of our journey? Or that you friends know how to feel about those results??

I am so sorry that this mistake happened to you and right before the holidays, although no time is good for this to happen. I want to just hold you right now and cry along with you. I am writing this post in RED because that is what I see when I read this post!

Now that being said, we know just what kind of fighter you are. Now that you know the true results, you will be able to plan for the next course of action. You are a strong and determined woman whom I am proud to know. Please know you will have happy thoughts in my heart as Ed and I spend Christmas together alone. It will be quiet here in our home this year but thoughts and prayers will flow for our family here.

Think to the future, stay strong, and know that we are right here for you. Now I have to tell Ed this news. He too was relieved hearing how well you were doing and I know will not be happy hearing what they have done to you. Lots of love, positive healing thoughts and plenty of prayers.

Sending a prayer right now for your well-being to get the party started!>>Believe51

12-24-2008, 09:28 AM	#2
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 3,000	Uggh!! What were they thinking when they sent the report over w/o being sure and why did they reread this after sending it?? Don't they know how we need to know the outcome, be it good or bad, so that we know what we are up against? Don't they realize that those reports 'tell' us how to feel, either complete relief of what is the next course of our journey? Or that you friends know how to feel about those results?? I am so sorry that this mistake happened to you and right before the holidays, although no time is good for this to happen. I want to just hold you right now and cry along with you. I am writing this post in RED because that is what I see when I read this post! Now that being said, we know just what kind of fighter you are. Now that you know the true results, you will be able to plan for the next course of action. You are a strong and determined woman whom I am proud to know. Please know you will have happy thoughts in my heart as Ed and I spend Christmas together alone. It will be quiet here in our home this year but thoughts and prayers will flow for our family here. Think to the future, stay strong, and know that we are right here for you. Now I have to tell Ed this news. He too was relieved hearing how well you were doing and I know will not be happy hearing what they have done to you. Lots of love, positive healing thoughts and plenty of prayers. Sending a prayer right now for your well-being to get the party started!>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!