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Hi Darlene, thanks for your response. I met w/ onc yesterday and with everything we talked about I forgot to tell him about the migraines still happening. I haven't had a brain scan in 2 - 2 1/2 years since orginal metastasis was dx. Onc has said in past that unless I'm having headaches that don't go away we can hold off on brain scan, but I guess I didn't think of my migraines as fitting that category, assumed it was hormonal. Now I will definitely follow up with him. I'm sorry to see you have been dealing with brain mets, did you have headaches/symptoms or was it found during initial/staging tests?
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Liz
3/05 Initial dx invasive dc 2 cm lump, age 39
lumpectomy & 3 of 5 nodes +, ER+/PR+, Her2+++
alternative chemo 5/05-7/05, rad 8/05-10/05
7/06 dx mets to vertebrae, pelvis & chest lymph nodes
8/06 - 10/06 tamoxifen, herceptin, oophorectomy & zometa
11/06 PET/CT showed continued bone mets, new spot on liver
12/06 began taxotere/herceptin 1x/3 weeks,
2/07 - 2-08 NED!
3/08 progression, start taxol/herceptin weekly, monthly zometa
8/08 start ai & herceptin
12/08 - progression, start weekly navelbine/herceptin thru 6/09 & monthly zometa
7/09 - PET/CT showed improvement in spine, but 2-3 lymph nodes in chest became active
9/09 - 11/09 - weekly abraxane/herceptin
12/09 - PET/CT - chest lymph nodes resolved, progression in spine & pelvis
2/10 - 6/10 - start tykerb/xeloda, progession in spine & pelvis
7/10 - start taxotere/carboplatin/herceptin
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