Thank you Louise for posting your experience. I am happy it went well! I also was grateful to Mary Jo for sharing. It gives me courage.
I also want a reconstruction. It should take place in January if I am not too tired. I must admit I am afraid but I do not want to stay the way I am. The surgeon who did the mastectomy is a big surgeon but he doesn't want to touch me anymore. I have neuropathic pain in my arm and he is afraid he might make things worse. I also have what they call an "ear" (!!). It is like a half a tennis ball stuck on the side of my chest. I consulted other surgeons who told me that my pain could perhaps disappear when they reconstruct because they will fix the "ear" and unstick the skin in which they believe nerves are caught. That would be so wonderful but I do not count on it.
I was puzzled because they say I am "too thin" . The surgeon will need to do a "dorsi flap" with an implant. I hope it will look natural because my other breast is small.
But the first thing for me to do is to try to get back into shape. I am so tired and my body feels like I have been run down by a truck.
Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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