HER2 Support Group Forums - View Single Post

Becky · 11-23-2008, 05:35 PM

Hi

I am so sorry you have to go through this. We are all here for you. I do want to recommend another board. The group is called FORCE (facing our risk of cancer empowered) and their site address is www.facingourrisk.org

This site is an amazing group of women who are BRCA 1 or BRCA 2 positive. Many other women are on the site that are not positive but got "indeterminant" results on their tests or (like me) have alot of cancer in their family but tested negative for BRCA 1 or 2 (perhaps these families are positive for a gene not yet discovered).

This group is a great resource for propholactic masectomy with or without immediate reconstruction, delayed reconstruction and bilaterial spaphingo oophorectomy.

They also give great support during this initial discovery time as well as advice on how and when to get your daughter tested.

You can make it through this rough road. At least you know exactly what caused your cancer and that you can prevent it from happening again.

Big hug to you

11-23-2008, 05:35 PM	#2
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Hi I am so sorry you have to go through this. We are all here for you. I do want to recommend another board. The group is called FORCE (facing our risk of cancer empowered) and their site address is www.facingourrisk.org This site is an amazing group of women who are BRCA 1 or BRCA 2 positive. Many other women are on the site that are not positive but got "indeterminant" results on their tests or (like me) have alot of cancer in their family but tested negative for BRCA 1 or 2 (perhaps these families are positive for a gene not yet discovered). This group is a great resource for propholactic masectomy with or without immediate reconstruction, delayed reconstruction and bilaterial spaphingo oophorectomy. They also give great support during this initial discovery time as well as advice on how and when to get your daughter tested. You can make it through this rough road. At least you know exactly what caused your cancer and that you can prevent it from happening again. Big hug to you __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"