Hi Robin,
Since I just started on Zometa last August, I was struck by your post on another thread:
"I'm NOT doing Zometa, nor would I ever do Zometa, unless I had bone mets . You see Zometa has a ten percent chance of causing osteonecrosis of the jaw(Jaw bone rotting and death), which is resistant to treatment."
Where did you get that number? I did a brief search of the internet and couldn't come up with anything more recent than 2006, but found nothing with statistics. I'm sure if I spent more time I would be able to find something but I was hoping you could provide a link to your stats. I did find this on the ADA website http://www.ada.org/prof/resources/to...eonecrosis.asp
My reasons for Zometa: I was on Tamoxifen for two years and finally went into menopause. Now that I could finally switch to an AI, I asked to be put on Femara. My onc did not do a bone density test until I requested it after the first three months on Femara (she felt I was "covered" because Tamoxifen
builds bones). The results were that I had osteopenia of the lumbar spine. I had read research about the benefits of Femara and Zometa and asked to start on Zometa. I had my first (and so far only ) dose in August. I am scheduled for another in Feb(sorry don't know the dosage).
I hope that this is a topic that will be discussed in San Antonio this December. For now I am going to sit back and wait to see what current reseach shows. I plan on having dose number two unless something definitive comes out to show me that the risks outweigh the benefits.
Thanks for starting this thread. I am sure it will generate a lot of interest.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
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Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault