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StephN · 11-20-2008, 12:43 PM

Dear Barb -
One thing to keep in mind is that what the surgeons are going to remove may NOT be cancer regrowing.
It could be NECROSIS or dying tissue.

This WAS the case with me and Barb H. We each had MRIs that looked to be tumor regrowth in the tumor beds of previously treated tumors. The path report showed NO cancer - only necrotic tissue.

This is my 'parayer' for you. That what they find on Monday is NOT more cancer.

Have a serious chat with your surgeon before they sedate you. Ask him HOW HE KNOWS it is more cancer. From my experience the scans cannot yet differentiate between the dying or growing tissue.

Christine also had a scare that a brain tumor was growing back, but she waited it out (gutsy lady that she is!) and it resolved in about one year.

Very positive thoughts going your way. Especially since you are doing well in body now!

11-20-2008, 12:43 PM	#26
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Dear Barb - One thing to keep in mind is that what the surgeons are going to remove may NOT be cancer regrowing. It could be NECROSIS or dying tissue. This WAS the case with me and Barb H. We each had MRIs that looked to be tumor regrowth in the tumor beds of previously treated tumors. The path report showed NO cancer - only necrotic tissue. This is my 'parayer' for you. That what they find on Monday is NOT more cancer. Have a serious chat with your surgeon before they sedate you. Ask him HOW HE KNOWS it is more cancer. From my experience the scans cannot yet differentiate between the dying or growing tissue. Christine also had a scare that a brain tumor was growing back, but she waited it out (gutsy lady that she is!) and it resolved in about one year. Very positive thoughts going your way. Especially since you are doing well in body now! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.