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Hi Tricia,
So nice to hear from you...Ireland is tops on my list as a place to visit since I've never been there (along with Scotland and Italy on my travel list, too. Now, Paris I've been to twice and could do that over and over again.).
It's great that you're in a study and a bit unfortunate that you didn't get the drug (Zometa), but at least you're being watched closely for five years, and, who knows, if they see some excellent results, maybe they'll curtail the study and start giving it to everybody, similar to the Herceptin study you mentioned. Good things come out of these trials. I, too, wished I'd been given it a bit sooner after treatment, but all this new information keeps coming along, and it's up to us to stay on top of it all. That why this board is so helpful to me when I have a question, and great people, like you, make comments.
Did you go into the Azure trial during your treatment and were you informed of it through your oncologist, or did you seek this out on your own? I notice your signature line mentions that you take Fosamax. Is this different from Zometa, and, if so, how? I thought they were similar, but perhaps they don't have the same makeup and, thus, aren't being studied like the Zometa.
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Diagnosed 12/03 at age 53
1.5cm tumor, ER-PR-, Her2 3+(rt side)
Stage 1B, Three negative nodes from Sentinel Node Biopsy
Paget's of the nipple, Infiltrating Ductal Carcinoma and DCIS of the rt breast
Bloom-Richardson score 8/9, P53+ 60-70%, Ki-67+ 30-40%
Skin-sparing mastectomy with immediate lat-flap reconstruction and saline implants, 1/04
Chemo: FAC, five sessions every three weeks Feb.-May 04, then switched to HTC weekly for 12 weeks, June-Aug 04
Zometa every 6 months for osteopenia, started April 09
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