HER2 Support Group Forums - View Single Post - Any of you taking Zometa a few years AFTER treatment?

Colleen007 · 11-13-2008, 02:16 PM

Hi Vicki,

I was diagnosed with bone mets right from the beginning, so I have been on Zometa since December of 2005. I went to Dana-Farber in June for another opinion (totally supported by my oncologist who I LOVE!), because some women in my support group with bone mets stopped Zometa after 2 years (and I was halfway through my 3rd year). The concensus was that instead of getting it every 6 weeks, I would get it once a quarter...the feeling is that my bones are pretty hard right now, but they want to keep them that way to keep the cancer in the bones at bay (I have been "stable" in the bones for almost 2 years now).

I know that you don't have bone mets, but maybe you will still find this helpful. We think it is the Zometa that has kept things stable in the bones for this long. Good Luck!

11-13-2008, 02:16 PM	#5
Colleen007 Senior Member Join Date: Aug 2006 Location: Franklin, MA Posts: 131	Hi Vicki, I was diagnosed with bone mets right from the beginning, so I have been on Zometa since December of 2005. I went to Dana-Farber in June for another opinion (totally supported by my oncologist who I LOVE!), because some women in my support group with bone mets stopped Zometa after 2 years (and I was halfway through my 3rd year). The concensus was that instead of getting it every 6 weeks, I would get it once a quarter...the feeling is that my bones are pretty hard right now, but they want to keep them that way to keep the cancer in the bones at bay (I have been "stable" in the bones for almost 2 years now). I know that you don't have bone mets, but maybe you will still find this helpful. We think it is the Zometa that has kept things stable in the bones for this long. Good Luck! __________________ Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old) Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted Mets to liver, spine & femurs (thus being stage IV right from the get-go) ER-, PR-, HER2+ Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol. Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans). Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks) Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that. June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007. Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.