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Old 11-12-2008, 07:00 PM   #20
chicagoetc
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Join Date: Sep 2007
Location: Near Chicago
Posts: 196
It is encouraging to me (but sad too) that others of you are or have experienced similar symptoms.

An update:

Oncologist sent me to a oncology neurologist. He sent me for neuropsych testing. The neuropsych tester sent me to cognitive rehab and to a psychiatrist to try meds that might help. They are addressing symptoms only. There is some improvement in memory/attention. I also have organized my life around several notebooks that carry information I need depending on where I go. I've also started taking notes every time I meet with someone at work.

No one is doing much about the nausea yet (had to choose to start by addressing the memory/attention part or the nausea....but not both at the same time). Maybe too the Herceptin is wearing off? Hard to tell. I'm on two nausea meds from before (not enough) and have started drinking ginger ale (ginger is good for nausea) and, surprisingly enough, put a plug in one ear when I am typing, writing etc. I was able to be at my computer for two hours this afternoon at work...which is a good sign.

Work is good. I'm there halftime and can't count on getting better as fast I need to (with respect to work). HR told me I could go forward with my plan to move from half time to three-fourths starting in December and then back to fulltime starting in January. They also have in place a fall-back plan (various ways they can plug in short-term disability if things revert and get worse...or if I find I can't do my job...which I won't know for a few weeks).

So I'm not as scared as I was. Nor feeling as alone.

Thanks to each of you,
Melanie
__________________
Diagnosed: 7/13/07 (or 7/7/07)
Surgery: 8/15/07 Modified Radical One Side with Lymph Node Dissection
Pathology Report: ER/PR-, HER2+ with FISH at 8.4 copies, Grade 3, Stage IIIa, 3.2 cm tumor plus 4/19 positive lymph nodes
Portacath: 9/7/07
Chemo: 9/14/07 with AC (every three weeks) for four rounds
Physical Therapy for ROM Loss / "Cording" (but not Lymphodema)
Taxol + Herceptin weekly (started 12/2007 with 8 of 12 Taxol)
Radiation: (28 rads from 3/07 to 4/07)
Reconstruction (silicone implant)
Herceptin done (10/08)
Cognitive Remediation (11/08 - 12/08)
Lymphedema Diagnosed 5/10/10 (almost 3 years post cancer diagnosis)
Lymphedema Rehab 9/10/10 - 11/10/10
Six years NED...7/7/2013!
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