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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Hi Caya, respectfully, that was not the conversation that Rich was having. He was talking about the lag time to access.
There are also often questions about whether access will ever be available through some national health services due to cost/benefit ratios and how much of the $$ pie can be dedicated to it... as I understand it, it has not been approved in the UK for wide access, nor in Japan as he mentioned.
I have my views and you have yours. Respectfully again, please discontinue highlighting me to make your argument, especially to insinuate that I might be an ogre who doesn't believe it should be available to everyone without hassle. That is unfair and disingenuous.
I have done some pretty extensive personal research about how complex it is to transform health systems, so I am well versed in how emotional the subject is. I know how financially fragile and controversial health systems around the world are in all countries, including Canada. You will not convince me that the system in your country is the appropriate system for our country. Your system works for you, you live there and have grown accustomed to it your whole life. I am happy you have a system that works for you and you have the treatment that you desire. I too have had everything I need and desire and have had the highest quality of doctors and treatments I could ever hope for. I was also a very responsible individual who always made having insurance a priority. I never thought of it as a right or a entitlement, it is my responsibility. I still feel that way. However, I do believe that our insurance system and processes have become extremely unbalanced and out of whack, it is upside down and the consumer is on the wrong end of it. I believe much of it can be corrected without rushing toward nationalizing it in the fashion that some countries have.
For the record, GSK makes Tykerb very readily available. If you don't have appropriate insurance coverage you can get it through their access program, you just have to apply and qualify for it, which is fairly simple to do.
Thanks for your post Diana. I am not looking for a fight from anyone, and I hope I don't offend, either. I just have a very pragmatic and ever evolving view about it.
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Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
Last edited by hutchibk; 11-04-2008 at 10:07 PM..
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