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What about your ears? Or maybe even your sinuses (which when draining can clog the ears and we all know Taxol and Herceptin cause sinus/allergy problems). When I was done with Herceptin for 3 months I got a sinus infection that took 2 rounds of antibiotics to clear and I was already over 2 yrs from diagnosis (since I had late Herceptin). I was shocked as I truly (by that point since chemo was nearing 2 yrs behind me) was healthy as a horse. The ear pressure and near fainting spells almost did me in. Like you, I did a better job at work prior to this and during chemo and most of Herceptin.
I saw an ear, nose and throat doctor who tested my hearing (which was fine) but I was diagnosed with TMJ and I work hard on not clenching my jaw etc and the tricks and "rehab" for that has helped.
Naturally, you are stressed about this too and that doesn't help either. Maybe you are looking in the wrong area of the body or you might have other symptoms that seem unrelated but are related to this. (Yes - I do watch the Health Channel and "Mystery Diagnosis" occassionally).
Lastly, the first year after treatment is over (and we are in treatment longer than the non-Her2 people) is a rough year. Year 2 is the worst I think - for any bc woman. But this may have to do with the allergic effects/ears/TMJ (perhaps) and not neuro. Just thinking out loud here.
Keep posting - especially after you see various doctors as something may click with one of us that brings more perspective on your symptoms so it can be solved and you can get back to normal asap.
Big hugs to you
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Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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