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dchips1 · 10-24-2008, 07:23 AM

A few resources that I found helpful
http://www.kidscope.org/ they have a PDF booklet called Kemo shark, I printed it in black and white and then he colored it to match the web picture. I still get herceptin through my "Porch" by chemo shark. Dustin is now 8. hurricane voices has a list of good childrens books, amazon, of half price books usually has them. the national cancer institute has a teen guide "when your parent has cancer" that you can add your specific info to.
We told the kids and the teens reactions varied and the five year old says you need everyone to bring you gatorade. When asked why he didn't talk to his kindergarten teacher he calming stated "Well you could die, I don't want to scare her!" We were in the store and I just picked him up and held him and cried. None of the teenagers were ready to go into it deep yet, their reactions were more of how does this affect me? Over the years Dustin now 8 still asks about chemo shark and I tell him I get chemoshark weekly named herceptin. The older kids will go and occasionally ask how things are going but even then It is usually was aren't you wearing your hat when I was bald for the second time, or why can't you take me somewhere, because I was tired. My daughter who just left for college when she gets home she is more clingy both from being gone and worrying about me. The other 2 17 year old kids well what's for dinner and I need money. Occasionally one will ask are you going to die? The answer I give is not today. Unless I get taken out by teen drivers like you, or get hit by the bus..!!!!!!

Take care, kiss your kids every night, touch them , love them, tell them the things you want them to always remember , I love yous , love God, be a good parent, because you'll sleep better knowing that if the next scan or test is bad : you have cherished your kids and spouse, and if the bus comes they will know that you LOVE THEM
Sorry if this is all over but this is how I live with stage 4 lots of love and humour.

I pray for you and your journey with your young child.

Darita Pfeister

10-24-2008, 07:23 AM	#5
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	My son was also 5 and my others were teens A few resources that I found helpful http://www.kidscope.org/ they have a PDF booklet called Kemo shark, I printed it in black and white and then he colored it to match the web picture. I still get herceptin through my "Porch" by chemo shark. Dustin is now 8. hurricane voices has a list of good childrens books, amazon, of half price books usually has them. the national cancer institute has a teen guide "when your parent has cancer" that you can add your specific info to. We told the kids and the teens reactions varied and the five year old says you need everyone to bring you gatorade. When asked why he didn't talk to his kindergarten teacher he calming stated "Well you could die, I don't want to scare her!" We were in the store and I just picked him up and held him and cried. None of the teenagers were ready to go into it deep yet, their reactions were more of how does this affect me? Over the years Dustin now 8 still asks about chemo shark and I tell him I get chemoshark weekly named herceptin. The older kids will go and occasionally ask how things are going but even then It is usually was aren't you wearing your hat when I was bald for the second time, or why can't you take me somewhere, because I was tired. My daughter who just left for college when she gets home she is more clingy both from being gone and worrying about me. The other 2 17 year old kids well what's for dinner and I need money. Occasionally one will ask are you going to die? The answer I give is not today. Unless I get taken out by teen drivers like you, or get hit by the bus..!!!!!! Take care, kiss your kids every night, touch them , love them, tell them the things you want them to always remember , I love yous , love God, be a good parent, because you'll sleep better knowing that if the next scan or test is bad : you have cherished your kids and spouse, and if the bus comes they will know that you LOVE THEM Sorry if this is all over but this is how I live with stage 4 lots of love and humour. I pray for you and your journey with your young child. Darita Pfeister __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.