HER2 Support Group Forums - View Single Post - Herceptin/DM1 Trial folks

Barbara H. · 10-20-2008, 04:11 PM

I have been on it since a year ago this past September. It continues to work for me and is very tolerable. It does have the side effect of elevated liver enzymes and my red blood counts are somewhat low. When my liver enzymes are too high I have to skip treatment. I am on the stage 1 trial and receive it every week. My dose is therefore higher than the three week trial. I have had some inflammation in my lungs which could be a result of the chemo. Six weeks ago it was stable and I was able to skip surgery. I have a CT and bone scan tomorrow and am crossing my fingers that it will still be stable. I do not want to have surgery.

This is a very tolerable drug and I barely know that I am on anything. I have had recurrent nosebleeds that are annoying.

Good luck with this trial.

Barbara H.

10-20-2008, 04:11 PM	#4
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	I have been on it since a year ago this past September. It continues to work for me and is very tolerable. It does have the side effect of elevated liver enzymes and my red blood counts are somewhat low. When my liver enzymes are too high I have to skip treatment. I am on the stage 1 trial and receive it every week. My dose is therefore higher than the three week trial. I have had some inflammation in my lungs which could be a result of the chemo. Six weeks ago it was stable and I was able to skip surgery. I have a CT and bone scan tomorrow and am crossing my fingers that it will still be stable. I do not want to have surgery. This is a very tolerable drug and I barely know that I am on anything. I have had recurrent nosebleeds that are annoying. Good luck with this trial. Barbara H.