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Chelee · 10-10-2008, 12:19 AM

Kat, Yes my doctors have mentioned weight bearing exercises and increasing my vitamin D3. My Endo just added 5000 IU's once per wk to my regular amount of D I take. But I'm still concerned that is not near enough. My last labs that checked my vitamin D level was low. (24). Which the lowest it should be for our reference range is 30. I've heard others on her have their doctors add 50.000 IU's. So I'm wondering why I only had 5000 iu's once per wk added? My Endo seems to think adding the vitamin D is going to help my increase my bone density. He just keeps telling me he's working on it while by bones get worse! I just requested a new endo when I went to my primary doc's office this wk. This endo is NOT doing enough for me.

My last two DEXA scans shows a significant decrease in bone density. The most recent scan was pretty worrisome. I am aware of all the possible side affects and especially the osteonecrosis of the jaw. If nothing else I thought I could have a few infusions the first year and see how that goes? Just doing nothing is worrying me.

Kat, you said the zometa may of helped. Did you have a recent DEXA to compare with your first baseline dexa? Are you going to go back on it? And did you have any problems with it after your infusions?

Chelee

10-10-2008, 12:19 AM	#7
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Kat, Yes my doctors have mentioned weight bearing exercises and increasing my vitamin D3. My Endo just added 5000 IU's once per wk to my regular amount of D I take. But I'm still concerned that is not near enough. My last labs that checked my vitamin D level was low. (24). Which the lowest it should be for our reference range is 30. I've heard others on her have their doctors add 50.000 IU's. So I'm wondering why I only had 5000 iu's once per wk added? My Endo seems to think adding the vitamin D is going to help my increase my bone density. He just keeps telling me he's working on it while by bones get worse! I just requested a new endo when I went to my primary doc's office this wk. This endo is NOT doing enough for me. My last two DEXA scans shows a significant decrease in bone density. The most recent scan was pretty worrisome. I am aware of all the possible side affects and especially the osteonecrosis of the jaw. If nothing else I thought I could have a few infusions the first year and see how that goes? Just doing nothing is worrying me. Kat, you said the zometa may of helped. Did you have a recent DEXA to compare with your first baseline dexa? Are you going to go back on it? And did you have any problems with it after your infusions? Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.