HER2 Support Group Forums - View Single Post

Marily · 10-08-2008, 11:31 PM

Hello,
I have been out of commission again getting my new "neck". I now have 4 cages in my c spine from 2-3 to 6-7.
I saw Dr Slamon 8 weeks ago and stopped Herceptin after being on it over 7 years.
I am now doing the Bayer test every 6 weeks for awhile I have been using that as a reference when it came available as the Alyssa test.. and found info on it on the computer. I have never had tumor markers so.... I have been from 6 to 9.9 and last test 6.6 So it has been my way of watching for a long time...My Dr had not heard of it but was willing to check into it and then let me try.. she has since put others on it also.
I will have a ct/pet every 3 months. Dr visit every 4 months. ( my onc left our clinic after being mine..for 8 years and I have yet to meet my new one so a bit leary of this change along with all the others.)
Dr Slamon also said I could stop the Aromasin which my old onc and I are a bit leery of doing, since I went from a tiny lump to stage IV in two months 8 years ago.I just feel stopping everything at once is too much.!
I also went fromstage IV to NED in a year and have remained so. a BLESSING if there ever was one.
Now after reading all you have to say hereon stopping I am again worried... but since I have been having "allergic reactions, or building up antibodies to the Herceptin, I felt it was the correct thing to do.
I hope and pray it was.
"Joining with the new group of advanced women paving the way" AGAIN.. .. We will see.

love and hugs, Marily

10-08-2008, 11:31 PM	#35
Marily Senior Member Join Date: Mar 2006 Location: Aurora CO Posts: 75	her2/serum test Hello, I have been out of commission again getting my new "neck". I now have 4 cages in my c spine from 2-3 to 6-7. I saw Dr Slamon 8 weeks ago and stopped Herceptin after being on it over 7 years. I am now doing the Bayer test every 6 weeks for awhile I have been using that as a reference when it came available as the Alyssa test.. and found info on it on the computer. I have never had tumor markers so.... I have been from 6 to 9.9 and last test 6.6 So it has been my way of watching for a long time...My Dr had not heard of it but was willing to check into it and then let me try.. she has since put others on it also. I will have a ct/pet every 3 months. Dr visit every 4 months. ( my onc left our clinic after being mine..for 8 years and I have yet to meet my new one so a bit leary of this change along with all the others.) Dr Slamon also said I could stop the Aromasin which my old onc and I are a bit leery of doing, since I went from a tiny lump to stage IV in two months 8 years ago.I just feel stopping everything at once is too much.! I also went fromstage IV to NED in a year and have remained so. a BLESSING if there ever was one. Now after reading all you have to say hereon stopping I am again worried... but since I have been having "allergic reactions, or building up antibodies to the Herceptin, I felt it was the correct thing to do. I hope and pray it was. "Joining with the new group of advanced women paving the way" AGAIN.. .. We will see. love and hugs, Marily