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Cannon · 10-07-2008, 06:55 PM

Oh yeah. The fatigue is tough, and does not go away that quickly. I think there is
1) a cumulative effect, where you hold on thru treatment, and then it all piles up on you
2) the let down factor of not being actively "fighting"
3) the getting used to new normal - and I still don't know what that is.

It also sounds like you are a busy bee, so it's not surprising that you're still tired. The hard part I find is that I'm absolutely fine, and then I hit the wall, hard, and have to stop everything.

Take good care, and yes, it's normal.

Oh, I finished chemo 1.5 years ago (herceptin 9 months ago) and my hair is just long enough for a tiny little pony tail. It seems curlier and rougher, but I'm not sure. Came back gray at first, then back to my usual color - the first growth was like wispy baby hairs.

10-07-2008, 06:55 PM	#3
Cannon Senior Member Join Date: Oct 2007 Posts: 203	Oh yeah. The fatigue is tough, and does not go away that quickly. I think there is 1) a cumulative effect, where you hold on thru treatment, and then it all piles up on you 2) the let down factor of not being actively "fighting" 3) the getting used to new normal - and I still don't know what that is. It also sounds like you are a busy bee, so it's not surprising that you're still tired. The hard part I find is that I'm absolutely fine, and then I hit the wall, hard, and have to stop everything. Take good care, and yes, it's normal. Oh, I finished chemo 1.5 years ago (herceptin 9 months ago) and my hair is just long enough for a tiny little pony tail. It seems curlier and rougher, but I'm not sure. Came back gray at first, then back to my usual color - the first growth was like wispy baby hairs. __________________ Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++ Neoadjuvant A/C 4X Dose Dense 11/06 Bilateral Mastectomy (no choice on the right, my choice on the left) Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07 33 Rads Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier) Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause BRCA negative - lots of cancer in my family survivor of thyroid cancer also have Crohn's disease CT and bone scan say NED as of 5/13 dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35 1/13 Acute pancreatitis - are you kidding me? 9/13 started Humira for Crohn's. starting to have some energy again B12 and Vit D both needed supplementation Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years? 4/14 Kidney stones/blockage/infection - related to Crohn's Disease 5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year 6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.