[Believe51]

In response to your question, here is a brief summary:

6/25/07=Many, many 'salted areas of the brain with mets ranging from 5-9mm. Since there was so many of these nasties we elected for Whole Brain Radiation to get a jump start on what was to possibly come.

9/20/07=MRI showed there were 2 still ceasing to be and their size was 2mm

1/7/08=Results of MRI were 'clear'
4/7/08=Results of MRI were 'perfect', like nothing was ever there in the first place!

8/26/08=MRI showed 6 mets but we later found out that there were 10 total, all under 9mm. We opted for the Gamma Knife since we knew we could zap these buggers once and for all. Also, if need be, we could do the procedure again.

These last set of mets were located in total different areas that any that were in the brain before. They we all in good areas of the brain but several proved important. One was in the 'sleep center' of the brain. Needless to say, Ed has not had REM sleep for a few months now. Another met was very close to the ear and since he is almost completely deaf, Gamma was the way to go since he needs his hearing for communication and decision-making. The most concern was to a met located in the brain stem. When Gamma Knifing this one we did not give it the radiation he had to the rest. If needed, we will re-radiate this portion again since it is vital.

Ed had no masses and no edema, very important when considering all of our options. With Whole Brain & Gamma Knife, Ed did well and we have observed through time that he responds well to radiation. No results of the GK procedure yet but will keep you posted. So far it is good for me to note that he had more problems with the Decadron than the radiation; not a bad thing.

By knowing Ed & I, you must first know that our treatments are scattered. Chemo, bloodwork, certain testing is in one hospital. Doctor and other testing in another hospital. Radiation and brain misc in a third center. Dana Farber is also involved in our quest for life. All four places are hand picked by us to provide the best journey possible, to buy the time we are yearning for. Communication is the key here and we have no problem, never have. We have given all places the green light to share information with others that may educate doctors or others in their cancer journey. My best friend is a sick man and his journey a trying rollercoaster ride.

Although some may not agree, nor chose to do their treatment like this, I feel it is keeping him alive since he has a most complicated journey. We have complete faith in our doctor and it is not a need to hear it from different places. Hand-picked the best places for the issues involved. These 'centers' are in a sense our form of second opinions. These last mets were spotted and between these teams we had many people look over the MRI's and whatnot. For this we are blessed. Everything was caught in plenty of time to take immediate action. Wow, I love writing that!

Personally, I would get a second opinion about what is going on in your brain and those options available for your situation. Call it a fresh set of eyes reviewing one of your most precious areas, your brain. It is good to know that they are in 'good' areas. I think you would have mentioned the word 'edema' if it applied to your case.

I shall continue to pray and send healing vibes your way. I have soft spot when it comes to you, Joan; your friendship is my prized gift. Very important that we have this site to share and explore things you can not get from books or professionals.

Explore your options Sweetheart. Think of getting a second opinion of what is happening here. Remain full of faith and peace, do not forget to breathe. I remember the times of panic and depression upon finding out about these brain mets. Yes it is scary, I cannot even attempt to lie about this. Yet I know that there are options and choices with each issue, with each patient.

With all of the research, advice, experience with brain mets......With knowing who 'Joan' is I leave with saying; I have complete confidence that you will surely make the right decision for Joan and her circumstances. Also, we are all right here for you always. As you seen the doctor today I send special love. Please update us to what you find out. Did not mean to go on a writing spree, gosh, who is taking the Decadron, Ed or ME?? LOL

Prayers, love, healing energy>>Believe51