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jhandley · 10-06-2008, 04:02 AM

I have been on Herceptin for 3 years and 1 week. Side effects=sinus problems and a runny nose. Tired the day of infusion. I have it every 4 weeks..sometimes I let it go to 5 weeks if I have a cold etc. If you go to 6 weeks you get a reloading dose. I went to London and had the serum test 6 weeks after a dose and it was normal. I wanted to see if my levels went up at all.
I have been NED the whole time..had a 15 mm liver spot.
First dx in 2001.
What I would like to do is have the serum test so I can see if the levels start going up...but the oncs in Oz are not convinced it is reliable enough.

If I was able to access the test at a resonable price I maybe could go off herceptin and see what happened...

Cheers
jackie (down under)

PS: take olive leaf extract, reishi extract,omega 3, flaxseed and Q 10.

10-06-2008, 04:02 AM	#22
jhandley Senior Member Join Date: Sep 2005 Location: Melbourne Victoria Australia Posts: 330	3 years and 1 week today I have been on Herceptin for 3 years and 1 week. Side effects=sinus problems and a runny nose. Tired the day of infusion. I have it every 4 weeks..sometimes I let it go to 5 weeks if I have a cold etc. If you go to 6 weeks you get a reloading dose. I went to London and had the serum test 6 weeks after a dose and it was normal. I wanted to see if my levels went up at all. I have been NED the whole time..had a 15 mm liver spot. First dx in 2001. What I would like to do is have the serum test so I can see if the levels start going up...but the oncs in Oz are not convinced it is reliable enough. If I was able to access the test at a resonable price I maybe could go off herceptin and see what happened... Cheers jackie (down under) PS: take olive leaf extract, reishi extract,omega 3, flaxseed and Q 10.