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Flori,
Don't take this the wrong way, and if I offend you please ignore it and just remember all my responses to you are offered out of love.
And besides, I have a low grade fever and headache myself from that DM1 slappin those suckas down, so I'm not in my right mind.
I know you feel crappy and when you feel that way, it's hard to keep your spirit from following.
But when I reread your thread subject, my little twisted mind just immediately thought we SHOULD WRITE some blues around all this stuff. You done so well with the DM1 rap, after all!
Maybe this would belong on the Keeping Your mind off cancer forum...can't be more scary than Sheilas commemorative thread!
So here goes:
Those d#$n orange pills keep me low to the ground...
Sista, I know ALL the finest restrooms in town...
Just wanna feel normal...whatever that be...
Can't even remember the last time I was me...
I keep pluggin' in to all that HER2 news...
But sometimes I can't shake those bad chemo mood blues....
Got thousands of pills, give me fevers and chills...
Got stadiums full 'o doctors...and drawers full of bills...
I ask 3 oncs and get 5 different opinions...
Thank God for the propellerheads and their Her2 minions...
Huggin lovin and prayin - they all give me the truths...
We're all cryin and laughin through those bad chemo blues...
Dedicated to all the wonderful sisters and brothers here. Especially you, Flori
Much love
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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