HER2 Support Group Forums - View Single Post - So frustrated-in tears

fauxgypsy · 09-25-2008, 05:25 PM

Yes it does. I emailed her a couple of days ago to ask if the Arimidex could be causing some nausea I am having. She told me that it never causes nausea. I was so frustrated that I sent her the information on the Arimedex website about it and from the NIH website.

When I finished Herceptin I asked her about getting my port flushed and in front of my husband she told every six to eight weks. I told her that the card that came with my port said every four weeks. Oh no, it doesn't have to be that often. Now she says that she didn't say that. I went ahead and got it flushed every four weeks anyway. I had decided to make sure that I had her put everything she said in writing. I'm just glad she's leaving. I am beginning to think that the problems I have been having with my onc were because of miscommunication with her.

It is good to have some answers. My arm is getting better with the antiviral and that is a good thing. It was like having shingles in the nerves of my arm. Now if I can just get the itching under control I will be great. I had tried to take several art courses at the University this fall and have had to drop two of them. I guess I have been in denial and just wanted everything to be back the way it was. Andi keeps telling me to accept that I will have a new normal but it must just take time. I just wanted to be the energizer bunny again. Well the bunny fell over. My batteries just don't recharge like they used to. I am slowly coming to terms with that. Hopefully before I fall over again.

Leslie

09-25-2008, 05:25 PM	#26
fauxgypsy Senior Member Join Date: Apr 2007 Location: Mississippi Posts: 600	Yes it does. I emailed her a couple of days ago to ask if the Arimidex could be causing some nausea I am having. She told me that it never causes nausea. I was so frustrated that I sent her the information on the Arimedex website about it and from the NIH website. When I finished Herceptin I asked her about getting my port flushed and in front of my husband she told every six to eight weks. I told her that the card that came with my port said every four weeks. Oh no, it doesn't have to be that often. Now she says that she didn't say that. I went ahead and got it flushed every four weeks anyway. I had decided to make sure that I had her put everything she said in writing. I'm just glad she's leaving. I am beginning to think that the problems I have been having with my onc were because of miscommunication with her. It is good to have some answers. My arm is getting better with the antiviral and that is a good thing. It was like having shingles in the nerves of my arm. Now if I can just get the itching under control I will be great. I had tried to take several art courses at the University this fall and have had to drop two of them. I guess I have been in denial and just wanted everything to be back the way it was. Andi keeps telling me to accept that I will have a new normal but it must just take time. I just wanted to be the energizer bunny again. Well the bunny fell over. My batteries just don't recharge like they used to. I am slowly coming to terms with that. Hopefully before I fall over again. Leslie __________________ In the world of destiny, there are no statistics. Jan. 26- mammogram and ultrasound- suspicious lump Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes ER+/PR+, her2 +++, nuclear grade 3 of 3 February 20-PET scan showed something on liver. No biopsy. March- Started carboplatin, herceptin, taxol on a four week cycle May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy June 21- new onc, very concerned that there had been no biopsy, June 18th-CAT scan, bone scan-negative August 7th - Brain MRI-negative August 9th- mastectomy, all pathology negative January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07 July 2008-Finished Herceptin!