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I will try to answer all of the question. The time frame since I paid in Social Security is an issue. I had been putting pretty much all profit back into my business. The Social Security office told me one thing at first and then told me something else. One of the case workers even told me that I would have to change my last name to my husband's before they could help me. I had to call the IRS number about that one.
I do use the Walmart pharmacy and they have been really good about helping me decide what to put on Medicaid and what to pay for.
I have already had some problems with lymphedema. They removed 16 nodes. As long as I don't do a lot with my right arm the swelling pretty much stays down. My arm does hurt a lot and now they think I have a viral infection in the nerves of my right arm. First it was phlebitis then it was cellutis now it is viral. I think they are on the right track but is does get frustrating.
Brenda and Maryanne, I did not realize that that help was available and I will look into it. I kept thinking that we could manage but it is exhausting. I have played telephone tag with the Rehabilitation office for some time now. Hopefully they can help out. I have applied for some positions in Biology (teaching or research) but though I came close to getting a faculty position at U of M, my skills are out of date and I still would have to miss often at this point.
Thank you all so much. Friends and family who have never been through something like this just do not understand. I have one close friend who has chronic health problems who has been a rock for me. Y'all are great. Soccer mom, I will eamil you soon.
Leslie
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In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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