HER2 Support Group Forums - View Single Post

Rich66 · 09-21-2008, 12:42 AM

After posting in response to Joy's situation, deceided to make it a new thread.
I would love it if folks would run this list by their oncs and see if they have resources to more fully investigate these potential treatments:

Rexin-G has been used/approved in Phillipine (Asian Hospital, Manilla) trials for met cancers for a couple years. They tell me limited use with bc but there is a bc trial in Santa Monica CA currently recruiting in a phase I/II trial. I have talked with the research coordinator. They are well underway trying different dosage levels. My mom doesn't qualify..no previous chemo, abnmormal liver function tests exclude her. There is the Lazerex foundation that can help with $$.
http://her2support.org/vbulletin/sho...ighlight=rexin
http://her2support.org/vbulletin/sho...ighlight=rexin

There is a human trial in England finishing by end of year on Doxorubicin followed by Zolendronate. Significant survival benefit in mice results. I have made some e-mail contact with the lead researcher. Could this be done off label?:
http://her2support.org/vbulletin/showthread.php?t=35392

There is the LIFT trial gearing up for human phase 1 http://www1.wfubmc.edu/LIFT This could be huge based on mice tests but no human data yet.
Lily has looked into this trial.

There is the Vitamin D/macrophage issue as outlined here:
http://her2support.org/vbulletin/showthread.php?t=35531
Writer of article suggests in e-mail to me that an independent onc could get this going? Supposedly N. Yamamoto is talking with Harvard med. I have a friend in Philly looking into the "Socrates Institute.." but says address is in a lower income residential area. Maybe all the research is in Japan? I e-mailed Yamamoto. No bounce back but no reply.

Liver support/anti-met of Milk Thistle here:
http://her2support.org/vbulletin/showthread.php?t=35588 Some oncs won't combine wit htreatment but others will. MD Anderson listing doesn't suggest it's a problem combining but the wording is a bit vague or restrained.

Erbitux/celebrex/ant-inflamm thread here:
http://her2support.org/vbulletin/showthread.php?t=35463

And a stretch here but Biocancell from Israel seems like a promising overall approach.
http://her2support.org/vbulletin/showthread.php?t=35528

. I also have a crude Word document which is a bit more of a paper read if that helps anyone.

09-21-2008, 12:42 AM	#1
Rich66 Senior Member Join Date: Feb 2008 Location: South East Wisconsin Posts: 3,431	A list for your onc. After posting in response to Joy's situation, deceided to make it a new thread. I would love it if folks would run this list by their oncs and see if they have resources to more fully investigate these potential treatments: Rexin-G has been used/approved in Phillipine (Asian Hospital, Manilla) trials for met cancers for a couple years. They tell me limited use with bc but there is a bc trial in Santa Monica CA currently recruiting in a phase I/II trial. I have talked with the research coordinator. They are well underway trying different dosage levels. My mom doesn't qualify..no previous chemo, abnmormal liver function tests exclude her. There is the Lazerex foundation that can help with $$. http://her2support.org/vbulletin/sho...ighlight=rexin http://her2support.org/vbulletin/sho...ighlight=rexin There is a human trial in England finishing by end of year on Doxorubicin followed by Zolendronate. Significant survival benefit in mice results. I have made some e-mail contact with the lead researcher. Could this be done off label?: http://her2support.org/vbulletin/showthread.php?t=35392 There is the LIFT trial gearing up for human phase 1 http://www1.wfubmc.edu/LIFT This could be huge based on mice tests but no human data yet. Lily has looked into this trial. There is the Vitamin D/macrophage issue as outlined here: http://her2support.org/vbulletin/showthread.php?t=35531 Writer of article suggests in e-mail to me that an independent onc could get this going? Supposedly N. Yamamoto is talking with Harvard med. I have a friend in Philly looking into the "Socrates Institute.." but says address is in a lower income residential area. Maybe all the research is in Japan? I e-mailed Yamamoto. No bounce back but no reply. Liver support/anti-met of Milk Thistle here: http://her2support.org/vbulletin/showthread.php?t=35588 Some oncs won't combine wit htreatment but others will. MD Anderson listing doesn't suggest it's a problem combining but the wording is a bit vague or restrained. Erbitux/celebrex/ant-inflamm thread here: http://her2support.org/vbulletin/showthread.php?t=35463 And a stretch here but Biocancell from Israel seems like a promising overall approach. http://her2support.org/vbulletin/showthread.php?t=35528 . I also have a crude Word document which is a bit more of a paper read if that helps anyone. __________________ Mom's treatment history (link) Last edited by Rich66; 09-21-2008 at 02:02 AM.. Reason: because I type lysdexically....