HER2 Support Group Forums - View Single Post - bye xeloda! - hello my old friend herceptin! and tykerb stay right where you are...

Joan M · 09-19-2008, 04:35 PM

Brenda,

I think I'll be saying "hello" to Xeloda as my onc wants me to do six cycles to back up the lung RFA I had.

I'm due for my first follow-up PET/CT next week, and I'm hoping that the lung is clear from the procedure and that there are no other spots. If this is the case, I can stick with just the the six cycles.

You did really well with the side effects of Xeloda for the 18 mos. And I'm sure you'll handle the Herceptin, too.

I hope I do just as well as you on Xeloda since I need to work to keep my medical insurance ... in fact I'm at work now (even though tecnically I work 9 to 5), due to the craziness in the markets this week.

Joan

09-19-2008, 04:35 PM	#2
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Brenda, I think I'll be saying "hello" to Xeloda as my onc wants me to do six cycles to back up the lung RFA I had. I'm due for my first follow-up PET/CT next week, and I'm hoping that the lung is clear from the procedure and that there are no other spots. If this is the case, I can stick with just the the six cycles. You did really well with the side effects of Xeloda for the 18 mos. And I'm sure you'll handle the Herceptin, too. I hope I do just as well as you on Xeloda since I need to work to keep my medical insurance ... in fact I'm at work now (even though tecnically I work 9 to 5), due to the craziness in the markets this week. Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!