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Hi,
Mouth sores are very common with many of these regimens. Are you using any kind of mouth rinse on a regular basis. I would recommend 1/4 teaspoon of baking soda in about 6 ounces of warm water. Rinse and spit about 4 times. I would do this at least 3 times per day.
I am here in the US and do find that my doctor is very willing to go off protocol. I think early on in my disease he was more apt to stick to protocol, but I am stage 4 and 4.5 years into this battle, and we are at the "let's try it and see if it works" stage. If you are not happy with the care you are receiving or if you don't feel heard, try someone else. Your oncologist should be your partner in this journey, not your boss!
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Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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