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Dang, Joy.
I was getting ready to pm you as I thought it would be about time for more information. I was so hopeful that the DM1 would work for you, as of course were you. But as you know, everyone is different and when one therapy fails, the next one may very well succeed. That is of course especially the case with the "experimental" therapies.
I know you and your team will come up with a plan for the next step.
You had in the past been doing research into RFA and the Theraspheres. Are either of these still options you could pursue? Lily is being treated with the spheres. I don't know if she has much info on response yet.
I know you're feeling sad and maybe a little defeated. You've got every right to feel that way and if you want to cry or scream or throw things, go ahead and do it. I just wish I could hug you right now.
But although you may be weary, you are NOT yet defeated!
Much much love and many prayers are whirling through the universe...to you right now.
Love
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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