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pattyz · 09-17-2008, 10:18 AM

Judi,

Don't know if I qualify, as you ask for info from those who: "experienced this treatment 3 to 9 months ago".

I had CyberKnife to treat a remaining 6 brain mets; two sessions, two days apart. But this was May 2004. Something like 53 months ago.

Here is what I wrote to another who asked about my experience:

"I was on the table for 90 minutes each session...... I had a lot of pain on the back side of my head from the amount of time head was in that position. They clamp the mask down TIGHT. I found that purposely pursing my lips, tongue over teeth the second day while getting clamped to table gave me just enough room so I wasn't sore in mouth afterwards. Also had some Ativan that round. Much better, tho' head was sore again.

This was the only time I lost all hair to area radiated, and I believe it was from the area treated: low back of head. All hair grew back in a normal time frame.

All my focalized rads were 100% successful. I had a minimal amount of head pressure, some dizziness that low dose decadron for 7-10 days handled."

This was at a new CK center. I don't believe I've heard of anyone else since then who exp. exactly what I did... I think it has to do with a more knowledgable / older CK group.

You should be just fine, really.

best wishes,
pattyz

09-17-2008, 10:18 AM	#9
pattyz Senior Member Join Date: Mar 2006 Posts: 306	Judi, Don't know if I qualify, as you ask for info from those who: "experienced this treatment 3 to 9 months ago". I had CyberKnife to treat a remaining 6 brain mets; two sessions, two days apart. But this was May 2004. Something like 53 months ago. Here is what I wrote to another who asked about my experience: "I was on the table for 90 minutes each session...... I had a lot of pain on the back side of my head from the amount of time head was in that position. They clamp the mask down TIGHT. I found that purposely pursing my lips, tongue over teeth the second day while getting clamped to table gave me just enough room so I wasn't sore in mouth afterwards. Also had some Ativan that round. Much better, tho' head was sore again. This was the only time I lost all hair to area radiated, and I believe it was from the area treated: low back of head. All hair grew back in a normal time frame. All my focalized rads were 100% successful. I had a minimal amount of head pressure, some dizziness that low dose decadron for 7-10 days handled." This was at a new CK center. I don't believe I've heard of anyone else since then who exp. exactly what I did... I think it has to do with a more knowledgable / older CK group. You should be just fine, really. best wishes, pattyz