Thank you all so much for the valuable points. I think the 'mets' in my liver already got 'dissolved'. Now how about the irritating spot at the joint of my r. shoulder blade?
When the huge tumor resided in my brain since childhood started causing symptoms that I could not bear any more, I had to change my primary (who was ready to refer me to a psychiatrist) and then kept pressing on the 2nd primary doctor. It was not until a retired pathologist who was a volunteer at the library where I worked gave me advice - that my 'dizziness' was a serious matter - that I started get serious about my headaches.
Finally I squeezed out a referral to see a neurologist - after seeing a ear, nose, throat doctor, a skin doctgor, and a gynecologist. My jaw dropped when I saw the 'Headache specialist' sign by his door - why hadn't anybody told me there is a specialist for headaches and his name is 'neurologist'?
Then my insurance company ignored my pleas to allow me to have the surgery done by a neurosurgeon at Scott & White. Dr. Charles S. C. Chang had his training from Johns Hopkins and did his residency at Bethesda Naval Hospital (where Presidents go for their annual check) and happened to be an aquaintant of mine. He did a neurological exam on me without an appointment and then told me that we could wait, though not very long.
It took a maverick boss of mine who had legal office experience to get my special contract done. Then the surgery went on for 25 hours and I had 10-day semicomatose...
My 2nd brain surgery (Gamma-knife radiosurgery) was also delayed because the new neurosurgeon changed my annual check to bi-annual check. And my breast cancer recurrence was delayed, overlooked for 4 full years...
You can see that I am still pretty traumatized by those past experiences.
Thank you again for giving me such strong support and valuable tips. I think I will be able to 'calmly' discuss my concerns with my onco a week from next Monday. Thank you, guys. Y'all are the best!
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe