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Old 09-13-2008, 08:04 PM   #7
micheleu
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Join Date: Sep 2006
Location: Nebraska
Posts: 154
if you ae referring to my treatment, Tykerb is only given in trials to women that have not had Herceptin first. I took Herceptin to prevent a recurrence, and that's what they want to happen with Tykerb someday, use it to prevent a recurrence instead of Herceptin. So, I could not qualify to get Tykerb at all. But, off label means, your oncologist can order it for you and IF your insurance will pay for it you can have it. I took it for only 3 months then stopped it. I was having alot of diarrhea side effects from it. (I still have a 3 month stash, just in case!)
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Michele Ulmer

Dx.2003 Stage 3b 35 pos nodes

Dx August 2003 Stage 3B with 35/35 nodes IDC age 39
Lumpectomy
A/C x4 Taxol x12
35 radiation tx
1Year Herceptin in trial
HER2 vaccine trial Seattle
3 months Tykerb off label
NED

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