Thread: Scans?
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Old 09-12-2008, 03:33 PM   #2
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
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I don't think it's either.

It's not a bad sign - the doctor just needs to get a handle on what ALL you're dealing with. Don't assume they will find anything - I had these after finding the liver mets and all the other scans were clear.

I also don't think it's necessarily lax/slow. These tests should be done soon, but it is not really super urgent. In fact, I think I had mine after my first chemo! I know I didn't feel that way at the time and neither do you probably, but possible findings of bone or lung mets (which is what he's hoping to rule out) would not necessarily change treatment recommendations.

To get the WHOLE picture, I would also ask for a brain MRI. Then you have a baseline. Chances are that this would also come back clean, but if anything was found, the treatment for these would probably be different than for the liver mets.

Above all, don't assume these additional tests will show anything wrong...it's just more information.
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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