Christine & Joe's LIVING room
Our dear founders of this site have often expressed that they view these boards as an extension of their own Living Room. (I well understand this concept, as my husband and I had an upscale French restaurant and we ALSO considered it as an extension of OUR living room!)
In anyone's living room many people will pass. Some will be close like family or well-liked neighbors, others will be new acquaintences who are fleeting. Some will be the picture of health and a lot of fun to be around, others will be of a serious bent and others elderly or feeble.
Any family or neighborhood has a fairly complete mix of people and this board is no different.
Take a look at the "Just For Fun" thread where posters have shared more about who they are and where they come from.
Any given family will have someone who is the "go to" person in case of various events or problems. This board is a "go to" place where just about anything can be spoken about, and the "go to's" here will respond.
I think it is really OK and actually healthy to have a mix of emotions, but not to be sad too often. However, I have felt that as I have "lost" so many friends and acquaintences to this disease over the years, I have to stay involved for my own selfish reasons. I must overcome the sad days, and concentrate on the living. It is a way of strengthening my inner core to keep going on myself, in spite of all that this disease has wrought on my body. My mind and my emotions/spirit are MINE and this disease can not control those parts of me. NO, NO, NO.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|