HER2 Support Group Forums - View Single Post - A potential local study for mom..thoughts?

StephN · 09-11-2008, 11:35 AM

ei Rich -
Sorry your Mom's biopsy came back as mets. But, she should have more options than her oncs are allowing.

My opinion (as one who also had to fight liver mets) is that a trial where she does not know which group (means what drugs she gets) she is in may not be the best idea.

Someone her age needs to make the most of the chance she has and get drugs that have a good possibility to help her.

Navelbine is a drug that normally is fairly easy to tolerate. I know a couple of women 70 and over who have done well on it (one also had Herceptin and a hormone suppressor).

They should just get on with giving her something rather than fiddling around. Or treat the mets with ablation if the mets are in an area where this would work. (In my case tumors were not.)

I would go with weekly, and see how your dear Mom tolerates that.

09-11-2008, 11:35 AM	#2
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	ei Rich - Sorry your Mom's biopsy came back as mets. But, she should have more options than her oncs are allowing. My opinion (as one who also had to fight liver mets) is that a trial where she does not know which group (means what drugs she gets) she is in may not be the best idea. Someone her age needs to make the most of the chance she has and get drugs that have a good possibility to help her. Navelbine is a drug that normally is fairly easy to tolerate. I know a couple of women 70 and over who have done well on it (one also had Herceptin and a hormone suppressor). They should just get on with giving her something rather than fiddling around. Or treat the mets with ablation if the mets are in an area where this would work. (In my case tumors were not.) I would go with weekly, and see how your dear Mom tolerates that. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018. Last edited by StephN; 09-12-2008 at 10:42 AM.. Reason: garbled sentence!