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I was diagnosed in Dec. 2004 with Stage 3 breast cancer, had left side mascectomy and lymph node removal - 23 of 29 effected, did a/c & Taxol and radiation. Tried tamoxifen - didn't work. Did Herceptin. Was put back on Taxol when spots showed up in the liver in Nov 2006. I have been battling with bone pain for almost a year now. I first ended up in the hospital in November when the pain was so bad in my legs that I could walk. I had a tumor in the low spine that was effecting the sciatica. They did radiation and started me on Tykerb/Xeloda and I was up and around by Christmas. I then had another recurrance on New Years eve when I had spots show up on my sternum and directly behind that in the back. They did radiation on this area as well. This time I was in the hospital for 1 1/2 months. My insurance company decided to have home health care come in to do pain management for me. Everything was going great and I was hoping to go back to work when all of sudden in July my neck and shoulder area. One morning I couldn't move my arm and it got worse and worse. My husband called and ambulance and well now I had mets to be neck. Again radiation. They stopped my Tykerb/Xeloda until we get new scans. I am home again now with the home health - they are great. I have a PET scan tomorrow to see how everything looks. Hopefully things are shrinking and I can get back on the Tykerb/Xeloda or something else. My main stress right now is that my short term disability is up in November and I need to figure out what to do next. I am hoping they will be willing to extend it for 6 months because my plan is to be better and get back to work soon. I am sorry for rambling, but you are all so sweet to listen and give advice back.
Stephanie
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