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Debbie, I am er & pr positive and I've had an on-going problem with my FSH & estradiol levels. I had an ooph so I could go on Femara but for some reason I'm still not menopausal by my labs.
It's a long story so I won't get into it but I just went back up to City of Hope over this same issue and it seems there is nothing anyone can do about this? I had my ooph over a year ago and I'm still producing estrogen. We even tried zoladex on top of my ooph and that didn't even do it.
I am worried about not being on one but I've done everything I can about this issue. I'm at my wits end. Being stage IIIA with positive nodes and no radiation I want to do everything I can to prevent recurrance but for now I'm not on any AI's. I am 2 yrs & 7 months out and NED. (Knock on wood.) Not sure if this helps.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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