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Hey Donna, I don't have the dry mouth, just tingling sensation in both upper and lower lips and tongue. My words don't always come out as they should. Sounds like I have a lisp. My MRI did show nerve damage to the 9th cranial nerve which affects the tongue and lips. MRI suggested a viral syndrome. I haven't been sick. My docs are perplexed and I will have a repeat MRI in OCt. I have started taking the Vitamin D, but they don't think the 2 are related. All very weird. Will keep you all posted.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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