Thread: Low MUGA score
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Old 08-07-2008, 01:23 PM   #8
julierene
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Join Date: Dec 2005
Location: Illinois
Posts: 327
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I had an interesting time with my MUGA. I have to tell you all about this, because it just amazes the heck out of me every time I tell it.

Muga score (somewhere around there)

Jan. 2004 50 - 52%

Dec 2005 48 - 49% started HEC

Around Feb 2006 42% added lisinopril

May 2006 to April 2007 40 -48%

April 2007 switched to Tykerb/Xeloda

May 31, 2007 left my ex and forgot my lisinopril at the old house. I figured since I wasn't taking the Herceptin anymore, what was the use? I had other things to worry about.

July 2007 - after my MUGA scan, my radiologist came in to talk to me! I was shocked for him to take the time to see me. He ran the numbers again and asked me a TON of questions. Thinking I had screwed up my heart because I didn't get my lisinopril refilled, I started to break down almost in tears from the guilt. And after he felt sure that the test was run right, he told me my score was 63%. He wanted to know what I had been doing differently. After a lot of talk about my patterns and habits, he started probing into my divorce situation. He asked a whole bunch of questions about stress and I told him many of the side effects I was having. He said finally, he had never seen a case where a baseline had increased that much where the only true reason was attributed to stress. I had such trouble sleeping for the last year I was with my ex, that I only got an average of maybe 4 hours a night. He just shook his head and said, "That's a lot of stress young lady. Keep up the good work and finish that divorce!" For the first time in a long time, I was happy - and my heart was thanking me for it!
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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