Thread: Low MUGA score
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Old 08-01-2008, 08:31 PM   #7
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Since you aren't having chemo anymore, you should (talk to your onc) and start the CoQ 10. I swore by it. Work up slowly to 400mg per day (in divided doses). Start with 30 mg tab at breakfast for a couple of days then add another 30 mg dose per day with lunch. After a couple of days of taking 30 mg at breakfast and lunch, guess what? - add another 30 mg at dinner. After that you can buy 50 mg tabs and switch out the 30 mg at breakfast with 50 mg. I think you get the picture. I ended up taking 150 mg at breakfast and lunch and 100 mg at dinner. There are some studies that say 390 mg is an effective dose so that's why I took that amount. I also walked, walked, walked (if you can and if you do - work up to one hr at least 5X per week). If none of that works, a cardiologist will fix you right up with presciptions that will improve your heart's function but you should be able to do it on your own.

You don't even know if you were only 40 before all this began. Keep the faith. This is a reversible thing and you can go back on Herceptin again.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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