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Duga, how do you feel?
True, it does matter who does the test, it also matters WHEN the test is done - you want to have these tests done just before your herceptin, as the numbers will be lower after the Herceptin.
It's also normal to get a baseline scan, but I didn't really get one either until I'd been on TCH for 2 months.
Doug it's also possible to just get a bad test! I had a bogus ECHO a few months ago (nobody got excited because the LVEF was really high - but I knew it was bogus). The next one was right in the "normal" range for me.
Good that you are getting an ECHO, to confirm or deny the MUGA
Many, myself included, do take CoQ10 to improve heart function. That and all the usual stuff for a healthy heart.
At any rate, getting another test is important so you can be sure what you're really dealing with (as if you don't already have enough!)
Keep us posted.
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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