HER2 Support Group Forums - View Single Post - devastating news im so sad/worried/anxious everything

Barbara H. · 07-22-2008, 06:58 PM

Hi Sue,
My thoughts and prayers go out to you and your mom. Try to spend some quality time with your mom when you are home. That will mean so much to her. If she is able, ask her if she could write a journal about little events or memories in her life that you will always keep with you. She could even write about experiences with you when you were little.

My mother just turned 87 last Friday and my father is turning 90 in August. I am actually traveling to Michigan to celebrate his birthday. I have letters from my parents, but I don't have a journal. I am going to ask my husband to videotape some stories that she has told me through the years.

I also have bone mets and am currently on the Herceptin MCC DM1 trial. This trial has really helped me. Maybe you could go to her next appointment and ask what trials or options are available for her. She could also seek a second opinion. My heart does go out to you. My greatest concern is for my children. My youngest is 21 and was in sixth grade when I was first diagnosed. My middle daughter has autism and I feel as if I need to be here for her. My oldest daughter was a freshman in college and really was completely distraught when I was first diagnosed. Then two months before her wedding in 2004 I developed mets everywhere including in my brain. I'm still here.

I can certainly relate to how upset you are. Try to help your mom find some options if you can. In the meantime I send my thoughts, prayers and best wishes your way.

Barbara H.

07-22-2008, 06:58 PM	#3
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	Thinking of you!!!! Hi Sue, My thoughts and prayers go out to you and your mom. Try to spend some quality time with your mom when you are home. That will mean so much to her. If she is able, ask her if she could write a journal about little events or memories in her life that you will always keep with you. She could even write about experiences with you when you were little. My mother just turned 87 last Friday and my father is turning 90 in August. I am actually traveling to Michigan to celebrate his birthday. I have letters from my parents, but I don't have a journal. I am going to ask my husband to videotape some stories that she has told me through the years. I also have bone mets and am currently on the Herceptin MCC DM1 trial. This trial has really helped me. Maybe you could go to her next appointment and ask what trials or options are available for her. She could also seek a second opinion. My heart does go out to you. My greatest concern is for my children. My youngest is 21 and was in sixth grade when I was first diagnosed. My middle daughter has autism and I feel as if I need to be here for her. My oldest daughter was a freshman in college and really was completely distraught when I was first diagnosed. Then two months before her wedding in 2004 I developed mets everywhere including in my brain. I'm still here. I can certainly relate to how upset you are. Try to help your mom find some options if you can. In the meantime I send my thoughts, prayers and best wishes your way. Barbara H.