[Becky]

Dear Val

I am ER+ and PR- (and of course Her2+). However, the ER+ and PR- is a rarer pathology. I have done extensive research on this pathology and a positive estrogen receptor without a positive progesterone receptor always signals that something else is going on and this something else usually has to do with the Her family (you might be Her2 negative and perhaps Her1 is involved) but you really need to get that tumor tested for at least Her2 (since the test is readily available). They can't tell you that you are Her2 negative unless they have tested your tumor for it - period!!

You should also find out how ER+ you are - low, moderate, high? Should you go on Tamoxifen? If so, are you Her2 since Herceptin and Tamox go well together. I think you have alot of questions to get sorted out. Let us know. I hope you are recovering well and I am thinking about you.

I am adding this part - didn't notice that you really only had DCIS - bully for you! This is certainly early. It could be a reason for not testing for Her2 (because there wasn't enough to do so). I too had DCIS on the other side (both ER and PR positive on that and they only had 3mm of dcis so did a "preliminary" type test that indicated Her2 negative (but I was very positive for both receptors on that side so I felt this was probably correct). I would still want to know what they did that indicates Her2 negative as you had high grade dcis.